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viernes, 7 de octubre de 2016
New Survey Findings Show Patients and Carers Want to Better Understand the Science Behind Cancer Diagnosis and Treatments
New survey findings indicate a significant need for scientific information that is accessible to, and understood by, people living with (and affected by) cancer. The majority of patient/carer organisations responding to the survey recognise that cancer science is complex and fast changing. As cancer science improves, and new discoveries occur, people who are living with cancer wish to learn more about the science of their cancer diagnosis and treatments. Nearly all (99%) of the patient/carer organisations surveyed “Agree” or “Somewhat agree” that patients want to know how their treatments work, and 91% of the respondent patient/carer organisations say that patients need to understand relevant scientific concepts about cancer to better manage their cancer.
The patient/carer organisations responding to the survey, however, also say that cancer science is hard to navigate for newly-diagnosed and experienced patients alike, and that currently-available patient information about cancer is difficult to understand, and confusing to people who are living with cancer [60% of respondent patient/carer organisations believe that cancer science is not well explained to patients and the public].
“An exciting new wave of cancer treatments is emerging out of the rapidly-advancing scientific concepts about cancer,” says Alex Wyke, founder and CEO of PatientView. “Yet, in the face of the advance, cancer patient information remains stubbornly hard for ordinary people to digest. The results from this 2016 survey show that over 90% of respondent patient/carer organisations believe that people living with cancer (and their families and carers) will be better equipped to manage the disease if they have a fundamental understanding of basic cancer science. Arming the cancer patient community with intelligible knowledge about cancer will allow people with cancer to understand more about the disease and its numerous diagnostic procedures and treatments. Such knowledge will empower people with cancer to communicate more effectively with doctors, nurses, and all the other health professionals who help them to fight cancer. In short, information about cancer science—carefully tailored to the needs of patients—will ultimately permit people with cancer to make truly informed decisions about their health.”
KEY FINDINGS FROM THE SURVEY INCLUDE:
99% of respondent patient/carer organisations “Agree” or “Somewhat agree” that people living with cancer want to know how their cancer treatments work.
Over 90% of respondent patient/carer organisations “Agree” or “Somewhat agree” that patients must understand scientific concepts about cancer if they are to better manage their cancer.
57% of respondents indicate that increasing the awareness of cancer treatment options among patients and the public is a top priority of their organisation.
61% of respondents say that the public is unfamiliar with basic scientific concepts about cancer.
83% of patient/carer organisations have been asked by patients/carers about immuno-oncology. However, only 48.2 % of those same organisations are themselves familiar with the topic of immunotherapies in oncology.
67% of patient/carer organisations have been asked by patients/carers about gene mutations associated with cancer and biomarkers. Again, though, only 52 % of the organisations themselves claim familiarity with the concepts of genetic testing and precision medicine.