Help us understand why poor guideline compliance may continue take young lives
- Take the survey now and join the anaphylaxis network.
- Nehmen Sie bitte an der Umfrage teil
- Si prega di prendere il sondaggio
- Por favor participe en la encuesta
- Proszę wziąć udział w ankiecie
Anaphylaxis is an acute and life-threatening condition, a systemic allergic reaction that in highly sensitive children can escalate into a fatal outcome within minutes. It thus requires urgent early diagnosis and treatment. Anaphylaxis, due to its rarity, suffers from an information shortage. Nobody can predict where or when it will happen. Preparedness is therefore key, as with seatbelts in car crashes or with fire-extinguishers against fires. There is no time for studies in a sharp situation.
Life saving guidelines are often not followed. Several updated guidelines exist on anaphylaxis. While adrenaline is the fast-acting first line treatment even in medical textbooks these days, the widespread poor practice with no or slower acting medications still continues to end up in preventable child deaths. How can this still continue? A well justified question, unfortunately without a given answer. There is a large interest in guidelines among paediatricians, but not all countries have updated guidelines. The availability of guidelines does not always mean that these are followed. Possible underlying reasons could be the lack of awareness of, or access to, available guidelines. Other reasons could be that guidelines are not accompanied by adequate training, or that doctors simply forget the guidance for rare conditions such as anaphylaxis in the community, when not actively used for a while. But where is the bottleneck? Why does the message not reach out?
To address this, Excellence in Paediatrics and the European Paediatric Association will work togther with leading paediatric allergy experts to understand and also address how more young lives can be saved. We would greatly value your contribution.
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